spending time with the good old tct

Spending and the good old tct.

Well I’ve kinda gone a little spending crazy over the past few days- just found out well kinda found out I am getting my Esa benefit now… Although am slightly worried I’ve spent some of it as I’ve not had a letter through about it yet…. So fingers crossed it is all mine- it was my national insurance on it- and I had reapplied, as originally they said I wasn’t in titled to it as I was still a student- point I’ve had to defer for the WHOLE year and am not aloud to work was beyond them, but thankfully the law has changed slightly now and because I get disability benefit I could claim ESA… Anyway back to my spending spree I’m currently on a brand new iPad, but I didn’t go into the apple store for that… I decided that I’d get a mac book pro- my old mac was beginning to break and with all my birthday money and child bonds I didn’t have to put that much towards it but I was going to wait till the new year just so I was sure I would have enough money to live and get Christmas presents as well but with the extra benefits being back paid from the 2nd Aug it ment I had quite a nice sum there so I decided to splash out and get both as well as a new photo editing programme called aperture 3. At least by getting it now I have something to keep me entertained while I can’t do uni, and something to show for my 21st.
On Saturday I got to spend the day with the lovely tct (teenage cancer trust) group which I loved so so much, it’s great to have made so many new friends that know what it’s like to be ill. We got to go to a company called M and M direct…. Where we were each given £100 worth of free clothes which we had pre ordered a few weeks before. We got shown around the factory and learnt how the factory worked and then got taken bowling and for food in Hereford, I has such a great time- although was so so tired afterwards I’ve been in a grump today and I hurt so much from it. Though not as much as I did the week before when we went bowling with Clic Sargent and tct in Cardiff (where the bowling balls were heavier). On Tuesday coming I may be meeting Cardiff City football club in the tct unit with all the gang from there- and I’m very pleased that for once I did have a slightly later clinic appointment as I should be able to see them now!
Being ill has at least come with a few perks like getting to do so much with others in a similar situation and realising your not the only one- but also how lucky you are, unfortunately not everyone is as lucky as I have been and I will never forget Kieran or Johnathon and will always be grateful for the support they and their families gave to me. Being out with the tct gang also made me realise how quickly I was treated as some of the group have been ill for some time- but then they r still aloud to attend school or college or there recovery time is much shorter…. It’s weird how we can all see positives and negatives in each others treatments- if only we didn’t just have to have a 24hour mot and then be fixed- life would be perfect for all of us.
In saying this however I wouldn’t change a thing…. And i know how that sounds to anyone normal- she is glad she got ill? Well I am, simply because I wouldn’t be who I am without it, I wouldn’t have met such amazingly strong friends- who I seem to have got close to so much faster than any other friendship, who will always like or comment on your status to show you they are there, and are online at 3am because just like you they cant sleep… I wouldn’t have learnt what a bone marrow was or what it did, or any of the other weird medical jargon that I now know, and I would have never met the incredible nursing staff that I have, many of whom have no idea what it’s like but will always listen, smile and care. To these people I will always be grateful because they are what have made me… Well me.